Here are just a few stories from our members.
If you have provided your story back in 2010/11 but do not see it here, please can you get in touch with Jo Webb. If you'd like to add your story, please use our online form
Miles was born with a congenital melanocytic naevus (CMN) Read Miles' story
Lizzie was born with a nasal tip haemangioma Read Lizzie's story
At 4 weeks old Jessica developed a large haemangioma in her cheek Read Jessica's story
Elise developed a haemangioma and was treated with Timolol Read Elise's story
Martha was born in 2009 and developed a subglottic haemangioma Read Martha's story
Dani is 36 and has a capillary malformation (port wine stain) Read Dani's story
Morgan was born with glomovenous malformations Read Morgan's story
Skye developed a facial and sub-glottic haemangioma Read Skye's story
Chloe was born in 2007 and developed a large haemangioma Read Chloe's story
Freya was born in 2012 with a haemangioma on her hand and wrist. Read Freya's story
Andrew was born with a capillary malformation (port wine stain) on his right cheek Read Andrew's story
Benjamin was born with a venous malformation on his left cheek Read Benjamin's story
Christopher has a capillary malformation (port wine stain) Read Christopher's story
Lilah was born with a venous malformation. Read Lilah's story